How to live with anaphylaxis
5th October 2022
How to live with anaphylaxis
Last month, the British Society for Allergy & Clinical Immunology called for additional funding for the Fatal Anaphylaxis Registry. This registry is a vital lifeline living with anaphylaxis. Their data analysis helps to identify patterns in anaphylactic attacks so that we can better understand how it plays into our everyday lives.
And it’s easy to see why it’s needed. Anaphylaxis causes swelling in the throat, breathing difficulties, fainting spells, and potentially death. It’s taken many lives in some avoidable circumstances. If you’re here because you’ve recently learned it’s a risk for you or a loved one, this blog is for you. Let’s look at how to live with anaphylaxis.
Learning your triggers
The first step is knowing what you’re up against. If you’ve recently discovered something that sends you into anaphylactic shock, there might be more triggers that can cause it. Common ones include various foods (such as nuts, milk, or shellfish), certain medicines and drugs, insect stings, and even latex.
Talk to your doctor about an allergy test. Either through a skin prick test or a blood sample, they’ll find everything you’re allergic to.
Avoiding your triggers
When you have those results, you need to learn how to avoid them throughout your life. This will be a tough road, but something you have to do. Let’s focus on controlling what’s in your home first.
You’ll have to become skilled in reading food labels. With your results, you’ll know what ingredients to look out for. Your weekly food shop will likely become much longer as you interrogate every label, but over time, you’ll learn the products that work for you.
If you’re allergic to a certain medicine, simply stay away from it. Or if you’re allergic to insect stings, keep your windows closed in summer and be careful in the garden. Consider insect repellent to keep them away. And if you do come close to something like a bee or wasp, stay calm and walk away slowly.
What to do when you’re out and about
Those tips are all well and good for your home. But when you head out, you have far less control over your environment. You’ll likely find that eating out is a particular headache. Always let wait staff know about your potential allergies. Many locations ask you about them as you sit down, so build up a list of locations where you know they take those extra precautions.
You might also struggle around your workplace. In this scenario, being open and honest with your manager or boss is your best course of action. They can be your support around the office, and put any steps in place to avoid you coming into contact with your triggers. Prepare for a long transition period as people learn to cooperate; some might not be as willing as others!
If you’re at risk of anaphylaxis, it isn’t going to be easy. And you’ll likely find your EpiPen is as vital as your keys when you leave the house. But there’s no reason you can’t still live a full life. Take the steps to keep yourself safe – and alive.
Are you worried about your anaphylaxis? Our allergists are here to help. With our years of expertise, you can trust us to be a source of knowledge and a friendly ear to talk to. You can register as a patient with us, or simply call us on 02031 433 449.


